OAR@UM Collection:https://www.um.edu.mt/library/oar/handle/123456789/200122024-03-28T22:21:04Z2024-03-28T22:21:04ZThe individual education programme : who knows best?Callus, Anne-MarieBajada, Georgettehttps://www.um.edu.mt/library/oar/handle/123456789/1199002024-03-15T07:15:54Z2024-01-01T00:00:00ZTitle: The individual education programme : who knows best?
Authors: Callus, Anne-Marie; Bajada, Georgette
Abstract: We invite the reader to imagine this: a group of adults are sitting around a
table discussing the individual educational programme (IEP) of a disabled
child. Let’s say that it’s a boy with cerebral palsy called Tom who attends a
Year 6 class in a mainstream primary school. The meeting is taking place in
the school and present is Tom’s teacher, his learning support educator and the
inclusion coordinator, who is chairing the meeting. They have invited Tom’s
speech therapist and physiotherapist to the meeting, and, after discussing
amongst themselves, they will also ask Tom’s parents to join them and give
their input. All of these adults will have the opportunity to have their say
about Tom, even if not everyone’s input will be valued equally. There will remain one glaring omission – Tom himself.
If we take the above picture as representative of an IEP meeting, then
we can consider the missing piece in the centre to be Tom’s voice. Everyone
seems to be eager to put their piece in the middle. Nobody seems to think
about asking Tom to do that. This scenario is played out many times over
for disabled children, whether it’s a Tom or Harriet, whether they are in a
mainstream primary or secondary or even a special school, whether the child
has a physical, sensory, intellectual or other type of disability, whether they
are older or younger children. The feature that IEP meetings have in common
is the production of a plan that determines the direction that the education of
the disabled child in question will take for the next year. The most common
thing missing in these meetings is the child themselves.2024-01-01T00:00:00ZThe lives of children and adolescents with disabilities : an introductionCallus, Anne-MarieBeckett, Angharad E.https://www.um.edu.mt/library/oar/handle/123456789/1198992024-03-15T07:14:26Z2024-01-01T00:00:00ZTitle: The lives of children and adolescents with disabilities : an introduction
Authors: Callus, Anne-Marie; Beckett, Angharad E.
Abstract: The choice of the term ‘lives’, rather than ‘life’ in the title of this book, was
intentional. Every child and adolescent, disabled or non-disabled, is a unique
individual with a particular set of attributes, interests, aspirations and life
experiences. Disabled children and adolescents are as diverse as any group
of young people. Whilst many will be engaged in similar activities, for example,
making their way through education, their experiences of those activities
will vary. Impairment does play a role here. The lives of disabled children
and adolescents do differ according to the nature of their impairments – at
least to some degree. More significantly, however, their lives differ because of
the different social, cultural, economic and political contexts in which they
live. It is because of this diversity that we chose to talk of lives, plural. That
‘disabled childhoods’ are shaped by different social formations and cultural
contexts is starting to be recognised. Further research is needed, however, to
truly understand these processes and the impact that they have on children’s
quality of life and wellbeing. We hope that this book makes a useful contribution
in this regard, providing readers with a window into the lives of a diverse
group of young people. The chapters in this book also provide insights into
the social systems and processes that impact the lives of disabled children and
adolescents and the strategies and practices that these young people use to
shape their own lives.2024-01-01T00:00:00ZThe lives of children and adolescents with disabilitiesBeckett, Angharad E.Callus, Anne-Mariehttps://www.um.edu.mt/library/oar/handle/123456789/1198982024-03-15T07:12:39Z2024-01-01T00:00:00ZTitle: The lives of children and adolescents with disabilities
Authors: Beckett, Angharad E.; Callus, Anne-Marie
Abstract: This book will be of interest to undergraduates, postgraduates and researchers in disability studies, childhood studies, medicine and health sciences, and sociology. It also provides insights that will be of use and value to professionals working with disabled children and adolescents in education, health and in disability-specific services.
Opening with four narratives that offer the reader a window into the lived experience of disabled children, adolescents and their families, subsequent chapters explore a range of issues facing disabled children from early childhood through to late adolescence. Topics include family life, early intervention, inclusive and post-secondary education, the right to play, digital participation, the effects of labelling and matters relating to agency and sexuality.
With chapters discussing research from Australia, Canada, Ireland, Italy, Malta, Mexico, New Zealand, Sweden and the UK amongst others, this book:; contributes to the existing body of knowledge about the lives of disabled children and adolescents, with a focus on socially created disabling factors; provides the reader with analysis of issues affecting disabled children and adolescents according to different conceptual frameworks, national contexts and with regard to different types of impairments/disabilities; highlights the main issues that confront disabled children and adolescents, their families and their allies in the early twenty-first century; highlights the importance of actively listening to the perspectives of disabled children and adolescents; It provides a rich source of knowledge and information about the lives of disabled children and adolescents, and a variety of perspectives on how their lives are affected by material and non-material factors, social structures and cultural constructions.2024-01-01T00:00:00ZUn’etica della vita quotidiana – tecnologia e persone con disabilità al lavoroGauci, Maria Victoriahttps://www.um.edu.mt/library/oar/handle/123456789/1112042023-07-03T08:29:39Z2023-01-01T00:00:00ZTitle: Un’etica della vita quotidiana – tecnologia e persone con disabilità al lavoro
Authors: Gauci, Maria Victoria
Abstract: La bioetica valuta il valore morale o l’appropriatezza delle scoperte fatte nella scienza, nella medicina e nella tecnologia e l’impatto del loro utilizzo sulla nostra umanità come individui, famiglie, comunità e società. In questo articolo mi concentrerò sull’impatto dell’uso di tecnologie sul posto di lavoro utilizzate da persone disabili per assisterle nello svolgimento del loro lavoro. Esplorerò se, per le persone con disabilità che possono lavorare, l’uso della tecnologia cambia le apparenze di fragilità e dipendenza in modo che possano non solo guadagnarsi da vivere, ma anche contribuire alla società. Negli aneddoti raccontati dai lavoratori con disabilità, incontreremo infatti casi di bioetica quotidiana, che, come suggerisce Giovanni Berlinguer, «riguardano le condizioni quotidiane e persistenti della popolazione mondiale, spesso difficili e talvolta tragiche. Egli sostiene che le decisioni, le conoscenze e i comportamenti individuali e collettivi di oggi sono plasmati dalle riflessioni sulla giustizia, sull’autonomia e sull’interdipendenza delle specie che si sono sviluppate nel corso della storia dell’umanità.2023-01-01T00:00:00Z