Issue Date	Title	Author(s)
2020	Healthcare system inputs and patient-reported outcomes : a study in adults with congenital heart defect from 15 countries	Van Bulck, Liesbet; Goossens, Eva; Luyckx, Koen; Apers, Silke; Oechslin, Erwin; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; APPROACH-IS consortium and ISACHD
2020	Health behaviours reported by adults with congenital heart disease across 15 countries	Holbein, Christina E.; Peugh, James; Veldtman, Gruschen R.; Apers, Silke; Luyckx, Koen; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD
2021	2020 ESC Guidelines for the management of adult congenital heart disease : the task force for the management of adult congenital heart disease of the European Society of Cardiology (ESC)	Baumgartner, Helmut; De Backer, Julie; Babu-Narayan, Sonya V.; Budts, Werner; Chessa, Massimo; Diller, Gerhard-Paul; Iung, Bernard; Kluin, Jolanda; Lang, Irene M.; Meijboom, Folkert; Moons, Philip; Mulder, Barbara J. M.; Oechslin, Erwin; Roos-Hesselink, Jolien W.; Schwerzmann, Markus; Sondergaard, Lars; Zeppenfeld, Katja; Hammoudi, Naima; Grigoryan, Svetlana V.; Mair, Johannes; Imanov, Galib; Chesnov, Jouri; Bondue, Antoine; Nabil, Naser; Kaneva, Anna; Brida, Margarita; Hadjisavva;, Ourania; Rubackova-Popelova, Jana; Guldbrand Nielsen, Dorte; El Sayed, Maiy Hamdy; Ermel, Raili; Sinisalo, Juha; Thambo, Jean-Benoit; Bakhutashvili, Zviad; Walther, Claudia; Giannakoulas, George; Balint, Olga Hajnalka; Lockhart, Christopher J.; Nir, Amiram; Murrone, Adriano; Ahmeti, Artan; Lunegova, Olga; Rudzitis, Ainars; Saliba, Zakhia; Gumbiene, Lina; Wagner, Kerstin; Caruana, Maryanne; Bulatovic, Nebojsa; Amri, Rachida; Bouma, Berto J; Srbinovska-Kostovska, Elizabeta; Estensen, Mette-Elise; Tomkiewicz-Pajak, Lidia; Coman, Ioan Mircea; Moiseeva, Olga; Zavatta, Marco; Stojsic-Milosavljevic, Anastazija; Simkova, Iveta; Prokselj, Katja; Gallego, Pastora; Johansson, Bengt; Greutmann, Matthias; Boughzela, Essia; Sirenko, Yuriy; Coats, Louise; European Society of Cardiology (ESC)
2021	Phenotypes of adults with congenital heart disease around the globe : a cluster analysis	Callus, Edward; Pagliuca, Silvana; Boveri, Sara; Ambrogi, Federico; Luyckx, Koen; Kovacs, Adrienne H.; Apers, Silke; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Kutty, Shelby; Moons, Philip; APPROACH-IS consortium and ISACHD
2021	Physical functioning, mental health, and quality of life in different congenital heart defects : comparative analysis in 3538 patients from 15 countries	Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Ombelet, Fouke; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD
2022	Heart failure and patient-reported outcomes in adults with congenital heart disease from 15 countries	Lu, Chun-Wei; Wang, Jou-Kou; Yang, Hsiao-Ling; Kovacs, Adrienne H.; Luyckx, Koen; Ruperti-Repilado, Francisco Javier; Van De Bruaene, Alexander; Enomoto, Junko; Sluman, Maayke A.; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD
2023	Patient-reported outcomes in the aging population of adults with congenital heart disease : results from APPROACH-IS	Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD
2022	Rationale, design and methodology of APPROACH-IS II : international study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease	Van Bulck, Liesbet; Kovacs, Adrienne H.; Goossens, Eva; Luyckx, Koen; Zaidi, Ali; Wang, Jou-Kou; Yadeta, Dejuma; Windram, Jonathan; Van De Bruaene, Alexander; Thomet, Corina; Thambo, Jean-Benoit; Taunton, Marshall; Sasikumar, Navaneetha; Sandberg, Camilla; Saidi, Arwa; Rutz, Tobias; Ortiz, Lucia; Mwita, Julius Chacha; Moon, Ju Ryoung; Menahem, Samuel; Mattsson, Eva; Mandalenakis, Zacharias; Mahadevan, Vaikom S.; Lykkeberg, Birgitte; Leye, Mohamed; Chern Leong, Ming; Ladouceur, Magalie; Akbar Ladak, Laila; Kim, Yuli; Khairy, Paul; Kaneva, Anna; Johansson, Bengt; Jackson, Jamie L.; Giannakoulas, George; Gabriel, Harald; Fernandes, Susan M.; Enomoto, Junk; Demir, Fatma; de Hosson, Michele; Constantine, Andrew; Coats, Louise; Christersson, Christina; Cedars, Ari; Caruana, Maryanne; Callus, Edward; Brainard, Sarah; Bouchardy, Judith; Boer, Anna; Baraona Reyes, Fernando; Emília Areias, Maria; Araujo, John Jairo; Andresen, Brith; Amedro, Pascal; Ambassa, Jean-Claude; Amaral, Fernando; Alday, Luis; Moons, Philip; Swain, Justin; Grech, Neil; Xuereb, Rachel; Craus, Sarah; Bonello, Maria; Borg, Darren; Farrugia, Paul; Cardona, Joanne; APPROACH-IS II consortium ISACHD
2021	Congenitally corrected transposition of the great arteries (CCTGA)	Grech, Neil; Borg, Alexander; Sammut, Mark Adrian; Caruana, Maryanne
2021	Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease : an international study	Casteigt, Benjamin; Samuel, Michelle; Laplante, Laurence; Shohoudi, Azadeh; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Brouillette, Judith; Moons, Philip; Khairy, Paul; APPROACH-IS consortium and ISACHD
2021	Patient-reported outcomes in adults with congenital heart disease following hospitalization (from APPROACH-IS)	Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD
2021	Sense of coherence in adults with congenital heart disease in 15 countries : patient characteristics, cultural dimensions and quality of life	Moons, Philip; Apers, Silke; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Luyckx, Koen; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD
2023	HTAD patient pathway : strategy for diagnostic work-up of patients and families with (suspected) heritable thoracic aortic diseases (HTAD). A statement from the HTAD working group of VASCERN	Caruana, Maryanne; Baars, Marieke J.; Bashiardes, Evy; Benke, Kalman; Bjorck, Erik; Codreanu, Andrei; de Moya Rubio, Elena; Dumfarth, Julia; Evangelista, Arturo; Groenink, Maarten; Kallenbach, Klaus; Kempers, Marlies; Keravnou, Anna; Loeys, Bart; Muino-Mosquera, Laura; Nagy, Edit; Milleron, Olivier; Nistri, Stefano; Pepe, Guglielmina; Roos-Hesselink, Jolien; Szabolcs, Zoltan; Teixido-Tura, Gisela; Timmermans, Janneke; Van de Laar, Ingrid; Van Kimmenade, Roland; Verstraeten, Aline; Von Kodolitsch, Yskert; De Backer, Julie; Jondeau, Guillaume; VASCERN working group
2018	A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation	Holbein, Christina E.; Fogleman, Nicholas D.; Hommel, Kevin; Apers, Silke; Rassart, Jessica; Moons, Philip; Luyckx, Koen; Sluman, Maayke A.; Enomoto, Junko; Johansson, Bengt; Yang, Hsiao‐Ling; Dellborg, Mikael; Subramanyan, Raghavan; Jackson, Jamie L.; Budts, Werner; Kovacs, Adrienne H.; Morrison, Stacey; Tomlin, Martha; Gosney, Kathy; Soufi, Alexandra; Eriksen, Katrine; Thomet, Corina; Berghammer, Malin; Alday, Luis; Callus, Edward; Fernandes, Susan M.; Caruana, Maryanne; Menahem, Samuel; Cook, Stephen C.; Rempel, Gwen R.; White, Kamila; Khairy, Paul; Kutty, Shelby; Veldtman, Gruschen; APPROACH-IS consortium and ISACHD
2018	2018 ESC Guidelines for the management of cardiovascular diseases during pregnancy : the task force on the management of cardiovascular diseases during pregnancy of the European Society of Cardiology (ESC)	Regitz-Zagrosek, Vera; Roos-Hesselink, Jolien W.; Bauersachs, Johann; Blomström-Lundqvist, Carina; Cífková, Renata; De Bonis, Michele; Iung, Bernard; Johnson, Mark Richard; Kintscher, Ulrich; Kranke, Peter; Lang, Irene Marthe; Morais, Joao; Pieper, Petronella G.; Presbitero, Patrizia; Price, Susanna; Rosano, Giuseppe M. C.; Seeland, Ute; Simoncini, Tommaso; Swan, Lorna; Warnes, Carole A.; Windecker, Stephan; Aboyans, Victor; Agewall, Stefan; Barbato, Emanuele; Bueno, Hector; Coca, Antonio; Collet, Jean-Philippe; Coman, Ioan Mircea; Dean, Veronica; Delgado, Victoria; Fitzsimons, Donna; Gaemperli, Oliver; Hindricks, Gerhard; Iung, Bernard; Juni, Peter; Katus, Hugo A.; Knuuti, Juhani; Lancellotti, Patrizio; Leclercq, Christophe; McDonagh, Theresa A.; Piepoli, Massimo Francesco; Ponikowski, Piotr; Richter, Dimitrios J.; Roffi, Marco; Shlyakhto, Evgeny; Simpson, Iain A.; Sousa-Uva, Miguel; Zamorano, Jose Luis; Hammoudi, Naima; Piruzyan, Armen; Mascherbauer, Julia; Samadov, Fuad; Prystrom, Andrei; Pasquet, Agnes; Caluk, Jasmin; Gotcheva, Nina; Skoric, Bosko; Heracleous, Hera; Vejlstrup, Niels; Maser, Maarja; Kaaja, Risto Juhani; Srbinovska- Kostovska, Elizabeta; Mounier-Vehier, Claire; Vakhtangadze, Tamar; Rybak, Karin; Giannakoulas, George; Gabor Kiss, Robert; Thrainsdottir, Inga S.; Erwin, R. John; Porter, Avital; Geraci, Giovanna; Ibrahimi, Pranvera; Lunegova, Olga; Mintale, Iveta; Kadri, Zeina; Benlamin, Hisham; Barysiene, Jurate; Banu, Cristiana A.; Caruana, Maryanne; Gratii, Cristina; Haddour, Laila; Bouma, Berto J.; Estensen, Mette-Elise; Hoffman, Piotr; Octavian Petris, Antoniu; Moiseeva, Olga; Bertelli, Luca; Vujisic Tesic, Bosiljka; Dubrava, Juraj; Kozelj, Mirta; Prieto-Arevalo, Raquel; Furenas, Eva; Schwerzmann, Markus; Mourali, Mohamed Sam; Ozer, Necla; Mitchenko, Olena; Nelson-Piercy, Catherine; ESC Scientific Document Group
2019	Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe	Moons, Philip; Luyckx, Koen; Dezutter, Jessie; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD
2019	Geographical variation and predictors of physical activity level in adults with congenital heart disease	Larsson, Lena; Johansson, Bengt; Sandberg, Camilla; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Rempel, Gwen; Menahem, Samuel; Caruana, Maryanne; Tomlin, Martha; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; APPROACH-IS Consortium
2018	Physical activity-related drivers of perceived health status in adults with congenital heart disease	Mi Ko, Jong; White, Kamila S.; Kovacs, Adrienne H.; Tecson, Kristen M.; Apers, Silke; Luyckx, Koen; Thometh, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; Callus, Edward; Kutty, Shelby; Gandhi, Amarendra; Moons, Philip; Cedars, Ari M.; APPROACH-IS consortium and ISACHD
2018	Patient-reported outcomes in adults with congenital heart disease : inter-country variation, standard of living and healthcare system factors	Moons, Philip; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Van Bulck, Liesbet; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD
2019	Education as important predictor for successful employment in adults with congenital heart disease worldwide	Sluman, Maayke A.; Apers, Silke; Sluiter, Judith K.; Nieuwenhuijsen, Karen; Moons, Philip; Luyckx, Koen; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Yang, Hsiao‐Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Mattsson, Eva; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Gosney, Kathy; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila S.; Callus, Edward; Kutty, Shelby; Bouma, Berto J.; Mulder, Barbara J. M.; APPROACH-IS Consortium and ISACHD