The 4th National Colloquium on research in Rare Disease will be organised by the Malta BioBank / (BBMRI.mt) under the patronage of Mrs Michelle Muscat, President of the National Alliance for Rare Diseases Support – Malta and Professor Godfrey LaFerla, Dean of the Faculty of Medicine and Surgery.
The event will be held on Tuesday 27 February (time and venue: TBC). It will showcase ongoing research about rare diseases that is conducted at the University of Malta for the benefit of patients and their families.
The event will be held on Tuesday 27 February (time and venue: TBC). It will showcase ongoing research about rare diseases that is conducted at the University of Malta for the benefit of patients and their families.
Rare Disease Day occurs on the last day of February each year and is promoted by EURORDIS, an international patient-driven alliance of rare disease patient organisations. The Colloquium is intended to raise awareness amongst healthcare professionals, policy makers and the general public about rare diseases and their impact on patients' lives.
Patient involvement in research needs to be taken to the next level to improve treatment for rare diseases. RESEARCH is the theme for Rare Disease Day 2018. It offers participants the opportunity to be part of a global call on policymakers, researchers, the pharmaceutical industry and healthcare professionals to increasingly and more effectively involve patients in rare disease research.
Any student or university member of staff conducting research about rare diseases is invited to participate and is kindly requested to submit a Title and Abstract (max 200 words) to Dr Alexander Camilleri via email by the 26 January. Further information about the event will be published in due course.
The Malta BioBank / (BBMRI.mt / EuroMed) Organising Committee (Centre of Molecular Medicine and BioBanking, University of Malta) would thank you in advance and looks forward to receiving your abstracts.