Unveiling the unspoken burden : a phenomenological exploration of the lived experiences of parents and guardians of young people with mental health challenges in Malta

Abstract

The lived experiences of parents and guardians in Malta who provide care for young people with mental health issues are examined in this research. They are voices that are far too frequently ignored in discussions about mental health. In-depth interviews were carried out using Interpretative Phenomenological Analysis (IPA) to reveal the significant emotional, psychological, and social effects of providing care in this setting. Three main themes emerged from the analysis, namely Caregivers' Emotional Strain, Caregivers’ Wellbeing, and Institutional and Social Barriers. Participants discussed how their sense of self and parental identity had changed, often via loss and self-sacrifice to the continuous psychological toll of long-term parenting, and the mental turmoil they encountered during acute crisis. Social isolation, emotional suffering, and chronic physical exhaustion were prevalent, and several carers were preoccupied with their constant responsibilities and vigilance. Systemic flaws made their difficulties worse, even in the face of moments of resilience and self-care. Participants mentioned a concerning lack of mental health education, especially in educational and healthcare contexts, outdated institutions, a lack of regular therapeutic routines, and inadequate service coordination. Societal stigma further deepened their isolation, silencing many from speaking out, especially when the mental health struggle involved their child. These stories, however, include not only suffering but also incredible strength, determination, and an urgent desire for change. This study emphasises the need for policies that acknowledge, support, and empower the unseen framework supporting Malta's mental health services, that are not only youth-focused but also inclusive of carer reality. In giving voice to these caregivers, this exploration urges mental health systems to be revamped as humane, inclusive, and just, where those who care are also cared for.