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| Issue Date | Title | Author(s) |
| 2015 | Assessment of patterns of patient-reported outcomes in adults with congenital heart disease — international study (APPROACH-IS) : rationale, design, and methods | Apers, Silke; Kovacs, Adrienne H.; Luyck, Koen; Alday, Luis; Berghammer, Malin; Budts, Werner; Callus, Edward; Caruana, Maryanne; Chidambarathanu, Shanthi; Cook, Stephen C.; Dellborg, Mikael; Enomoto, Junko; Eriksen, Katrine; Fernandes, Susan M.; Jackson, Jamie L.; Johansson, Bengt; Khairy, Paul; Kutty, Shelby; Menahems, Samuel; Rempel, Gwen; Slumanu, Maayke A.; Soufi, Alexandra; Thomet, Corina; Veldtman, Gruschen; Wang, Jou-Kou; White, Kamila; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and the International Society for Adult Congenital Heart International Study (APPROACH-IS) |
| 2021 | Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease : an international study | Casteigt, Benjamin; Samuel, Michelle; Laplante, Laurence; Shohoudi, Azadeh; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Brouillette, Judith; Moons, Philip; Khairy, Paul; APPROACH-IS consortium and ISACHD |
| 2019 | Differential impact of physical activity type on depression in adults with congenital heart disease : a multi-center international study | Mi Ko, Jong; White, Kamila S.; Kovacs, Adrienne H.; Tecson, Kristen M.; Apers, Silke; Luyckx, Koen; Thometh, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackiey, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; Callus, Edward; Kutty, Shelby; Moons, Philip; Cedars, Ari M.; APPROACH-IS consortium and ISACHD |
| 2019 | Education as important predictor for successful employment in adults with congenital heart disease worldwide | Sluman, Maayke A.; Apers, Silke; Sluiter, Judith K.; Nieuwenhuijsen, Karen; Moons, Philip; Luyckx, Koen; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Yang, Hsiao‐Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Mattsson, Eva; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Gosney, Kathy; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila S.; Callus, Edward; Kutty, Shelby; Bouma, Berto J.; Mulder, Barbara J. M.; APPROACH-IS Consortium and ISACHD |
| 2019 | Geographical variation and predictors of physical activity level in adults with congenital heart disease | Larsson, Lena; Johansson, Bengt; Sandberg, Camilla; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Rempel, Gwen; Menahem, Samuel; Caruana, Maryanne; Tomlin, Martha; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; APPROACH-IS Consortium |
| 2020 | Health behaviours reported by adults with congenital heart disease across 15 countries | Holbein, Christina E.; Peugh, James; Veldtman, Gruschen R.; Apers, Silke; Luyckx, Koen; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD |
| 2020 | Healthcare system inputs and patient-reported outcomes : a study in adults with congenital heart defect from 15 countries | Van Bulck, Liesbet; Goossens, Eva; Luyckx, Koen; Apers, Silke; Oechslin, Erwin; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; APPROACH-IS consortium and ISACHD |
| 2022 | Heart failure and patient-reported outcomes in adults with congenital heart disease from 15 countries | Lu, Chun-Wei; Wang, Jou-Kou; Yang, Hsiao-Ling; Kovacs, Adrienne H.; Luyckx, Koen; Ruperti-Repilado, Francisco Javier; Van De Bruaene, Alexander; Enomoto, Junko; Sluman, Maayke A.; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2017 | Illness perceptions in adult congenital heart disease : a multi-center international study | Rassart, Jessica; Apers, Silke; Kovacs, Adrienne H.; Moons, Philip; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Rempel, Gwen R.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila S.; Callus, Edward; Kutty, Shelby; Luyckx, Koen; APPROACH-IS Consortium and ISACHD |
| 2020 | Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease : an international study | Lévesque, Valérie; Laplante, Laurence; Shohoudi, Azadeh; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Brouillette, Judith; Casteigt, Benjamin; Moons, Philip; Khairy, Paul; APPROACH-IS Consortium and ISACHD |
| 2018 | A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation | Holbein, Christina E.; Fogleman, Nicholas D.; Hommel, Kevin; Apers, Silke; Rassart, Jessica; Moons, Philip; Luyckx, Koen; Sluman, Maayke A.; Enomoto, Junko; Johansson, Bengt; Yang, Hsiao‐Ling; Dellborg, Mikael; Subramanyan, Raghavan; Jackson, Jamie L.; Budts, Werner; Kovacs, Adrienne H.; Morrison, Stacey; Tomlin, Martha; Gosney, Kathy; Soufi, Alexandra; Eriksen, Katrine; Thomet, Corina; Berghammer, Malin; Alday, Luis; Callus, Edward; Fernandes, Susan M.; Caruana, Maryanne; Menahem, Samuel; Cook, Stephen C.; Rempel, Gwen R.; White, Kamila; Khairy, Paul; Kutty, Shelby; Veldtman, Gruschen; APPROACH-IS consortium and ISACHD |
| 2018 | Patient-reported outcomes in adults with congenital heart disease : inter-country variation, standard of living and healthcare system factors | Moons, Philip; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Van Bulck, Liesbet; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2021 | Patient-reported outcomes in adults with congenital heart disease following hospitalization (from APPROACH-IS) | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2023 | Patient-reported outcomes in the aging population of adults with congenital heart disease : results from APPROACH-IS | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2019 | Perceived health mediates effects of physical activity on quality of life in patients with a Fontan circulation | Holbein, Christina E.; Veldtman, Gruschen R.; Moons, Philip; Kovacs, Adrienne H.; Luyckx, Koen; Apers, Silke; Chidambarathanu, Shanti; Soufi, Alexandra; Eriksen, Katrine; Jackson, Jamie L.; Enomoto, Junko; Fernandes, Susan M.; Johansson, Bengt; Alday, Luis; Dellborg, Mikael; Berghammer, Malin; Menahem, Samuel; Caruana, Maryanne; Kutty, Shelby; Mackie, Andrew S.; Thomet, Corina; Budts, Werner; White, Kamila; Sluman, Maayke A.; Callus, Edward; Cook, Stephen C.; Khairy, Paul; Cedars, Ari; APPROACH-IS Consortium and ISACHD |
| 2021 | Phenotypes of adults with congenital heart disease around the globe : a cluster analysis | Callus, Edward; Pagliuca, Silvana; Boveri, Sara; Ambrogi, Federico; Luyckx, Koen; Kovacs, Adrienne H.; Apers, Silke; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Kutty, Shelby; Moons, Philip; APPROACH-IS consortium and ISACHD |
| 2018 | Physical activity-related drivers of perceived health status in adults with congenital heart disease | Mi Ko, Jong; White, Kamila S.; Kovacs, Adrienne H.; Tecson, Kristen M.; Apers, Silke; Luyckx, Koen; Thometh, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; Callus, Edward; Kutty, Shelby; Gandhi, Amarendra; Moons, Philip; Cedars, Ari M.; APPROACH-IS consortium and ISACHD |
| 2021 | Physical functioning, mental health, and quality of life in different congenital heart defects : comparative analysis in 3538 patients from 15 countries | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Ombelet, Fouke; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2019 | Prevalence and effects of cigarette smoking, cannabis consumption, and co-use in adults from 15 countries with congenital heart disease | Moons, Philip; Luyckx, Koen; Kovacs, Adrienne H.; Holbein, Christina E.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD |
| 2022 | Rationale, design and methodology of APPROACH-IS II : international study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease | Van Bulck, Liesbet; Kovacs, Adrienne H.; Goossens, Eva; Luyckx, Koen; Zaidi, Ali; Wang, Jou-Kou; Yadeta, Dejuma; Windram, Jonathan; Van De Bruaene, Alexander; Thomet, Corina; Thambo, Jean-Benoit; Taunton, Marshall; Sasikumar, Navaneetha; Sandberg, Camilla; Saidi, Arwa; Rutz, Tobias; Ortiz, Lucia; Mwita, Julius Chacha; Moon, Ju Ryoung; Menahem, Samuel; Mattsson, Eva; Mandalenakis, Zacharias; Mahadevan, Vaikom S.; Lykkeberg, Birgitte; Leye, Mohamed; Chern Leong, Ming; Ladouceur, Magalie; Akbar Ladak, Laila; Kim, Yuli; Khairy, Paul; Kaneva, Anna; Johansson, Bengt; Jackson, Jamie L.; Giannakoulas, George; Gabriel, Harald; Fernandes, Susan M.; Enomoto, Junk; Demir, Fatma; de Hosson, Michele; Constantine, Andrew; Coats, Louise; Christersson, Christina; Cedars, Ari; Caruana, Maryanne; Callus, Edward; Brainard, Sarah; Bouchardy, Judith; Boer, Anna; Baraona Reyes, Fernando; Emília Areias, Maria; Araujo, John Jairo; Andresen, Brith; Amedro, Pascal; Ambassa, Jean-Claude; Amaral, Fernando; Alday, Luis; Moons, Philip; Swain, Justin; Grech, Neil; Xuereb, Rachel; Craus, Sarah; Bonello, Maria; Borg, Darren; Farrugia, Paul; Cardona, Joanne; APPROACH-IS II consortium ISACHD |
