Rowing towards the shore : coping strategies in males living with lymphoedema

Abstract

Lymphoedema is a swelling in part of the body due to an obstructed flow of lymphatic fluid. Extant literature mainly targets coping strategies in females having breast cancer related lymphoedema. This research aims to explore the coping strategies of males living with lymphoedema, secondary to cancer treatment. Semi-structured, in-depth interviews were conducted with 13 males aged between 50 to 85 years. Five themes emerged namely: adjusting attire, changing lifestyle activity, distracting the mind, leaning onto available support and immersing in spirituality. Males described wearing loose, easy-to-wear clothing over swollen body parts. Changes in lifestyle included pacing of activities, avoiding/modifying activities to avoid injury and incorporating treatment in their daily routine. Distraction was enabled though immersion in work, engaging in hobbies and humorous banter. Participants also coped by expressing gratitude, living in the present moment, accepting situations over which they lacked control, connecting with nature, and turning to their religious beliefs. There is a need for health professionals to explore the illness narratives and coping strategies of males living with lymphoedema as this impacts their overall well-being. Interventions targeting coping strategies for males with lymphoedema should address the physical, emotional, psychological and spiritual domains of well-being.