The navigation of endometriosis-a struggle for coherence a Maltese perspective

Abstract

Endometriosis is a chronic gynaecological condition affecting millions of women worldwide. It is characterized by the presence of endometrial-like tissue outside of the uterus, often resulting in severe pelvic pain, infertility, psychological stress and other symptoms. Furthermore, the probability of persistent, recurrent symptoms and the absence of a definite explanation are likely to exacerbate endometriosis. These detrimental effects, causing a reduction in the quality of life are well represented in international literature. Illustrations, regarding the interactions with the medical profession are also represented. However, no study to date, was carried out regarding women’s lived experience of endometriosis within the Maltese context. To this end, a qualitative study was carried out, with the aim of providing a deep understanding of the impact of endometriosis on the lives of eight Maltese women by utilising in-depth interviews. The data illustrated the deep impact that endometriosis had on the lives of these participants, the delay in diagnosis and the dismissive attitude and lack of knowledge of the medical profession when interacting with the participants. This was mostly attributed to the normalisation of symptoms by family, friends, medical professionals and even the participants themselves. Finally, the findings highlight an urgent necessity of increasing awareness among the public as well as the medical profession, regarding this insidious disease.