In privacy and in health : reconciling data protection and scientific progress

Abstract

Can Europe protect privacy without paralysing science? Dr Roxanne Meilak Borg believes it can. The promise of data-driven medicine rests on access to some of the most intimate details of our lives. Yet the notion of public interest means that such data should, under certain conditions, be made accessible to researchers. Where does one draw the line and distinguish between privacy and bureaucracy? Meilak Borg's research confronts Europe’s struggle to balance the right to privacy with the collective good of scientific progress.