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DC Field | Value | Language |
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dc.contributor.author | Porteri, Corinna | - |
dc.contributor.author | Albanese, Emiliano | - |
dc.contributor.author | Scerri, Charles | - |
dc.contributor.author | Carrillo, Maria C. | - |
dc.contributor.author | Snyder, Heather M. | - |
dc.contributor.author | Martensson, Birgitta | - |
dc.contributor.author | Baker, Mark | - |
dc.contributor.author | Giacobini, Ezio | - |
dc.contributor.author | Boccardi, Marina | - |
dc.contributor.author | Winblad, Bengt | - |
dc.contributor.author | Frisoni, Giovanni B. | - |
dc.contributor.author | Hurst, Samia | - |
dc.date.accessioned | 2018-03-06T17:23:38Z | - |
dc.date.available | 2018-03-06T17:23:38Z | - |
dc.date.issued | 2017 | - |
dc.identifier.citation | Porteri, C., Albanese, E., Scerri, C., Carrillo, M. C., Snyder, H. M., Martensson, B.,… Hurst, S. (2017). The biomarker-based diagnosis of Alzheimer’s disease. 1-ethical and societal issues. Neurobiology of Aging, 52, 132-140. | en_GB |
dc.identifier.uri | https://www.um.edu.mt/library/oar//handle/123456789/27742 | - |
dc.description.abstract | There is great interest in the use of biomarkers to assist in the timely identification of Alzheimer's disease (AD) in individuals with mild symptoms. However, the inclusion of AD biomarkers in clinical criteria poses socioethical challenges. The Geneva Task Force for the Roadmap of Alzheimer's Biomarkers was established to deliver a systematic strategic research agenda (aka roadmap) to promote efficient and effective validation of AD biomarkers and to foster their uptake in clinical practice. In this article, we summarize the workshop discussion of the Geneva Task Force “ethical and societal issues” working group, which comprised bioethicists, clinicians, health economists, and representatives of those affected by AD. The working group identified the following key issues that need to be included in the roadmap: improving access to services through timely diagnosis, the need for a diagnostic research protocol before moving to clinical routine, recruitment in diagnostic research protocols in the absence of effective therapy, respect for the autonomy of the individual with mild cognitive impairment in information and consent process and the right not to know biomarkers results, need for counseling programs, disclosure of the diagnosis in a structured environment and the involvement of family members, health policies including the individuals' views and the protection of their interests, and the economic costs for society. | en_GB |
dc.language.iso | en | en_GB |
dc.publisher | Elsevier Inc. | en_GB |
dc.rights | info:eu-repo/semantics/restrictedAccess | en_GB |
dc.subject | Alzheimer's disease | en_GB |
dc.subject | Mild cognitive impairment | en_GB |
dc.subject | Informed consent (Medical law) | en_GB |
dc.subject | Disclosure of information | en_GB |
dc.subject | Genetics -- Moral and ethical aspects | en_GB |
dc.title | The biomarker-based diagnosis of Alzheimer’s disease. Ethical and societal issues | en_GB |
dc.title.alternative | The biomarker-based diagnosis of Alzheimer’s disease. 1-ethical and societal issues | en_GB |
dc.type | article | en_GB |
dc.rights.holder | The copyright of this work belongs to the author(s)/publisher. The rights of this work are as defined by the appropriate Copyright Legislation or as modified by any successive legislation. Users may access this work and can make use of the information contained in accordance with the Copyright Legislation provided that the author must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the prior permission of the copyright holder. | en_GB |
dc.contributor.corpauthor | Geneva Task Force for the Roadmap of Alzheimer’s Biomarkers | en_GB |
dc.description.reviewed | peer-reviewed | en_GB |
dc.identifier.doi | 10.1016/j.neurobiolaging.2016.07.011 | - |
dc.publication.title | Neurobiology of Aging | en_GB |
Appears in Collections: | Scholarly Works - FacM&SPat |
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