Maltese children with a hearing impairment : analysis of the current situation and its impact on the quality of life of parents

Abstract

Understanding the effect that a diagnosis of a childhood hearing loss has on parents would help professionals adopt an approach which diminishes parents’ possible negative feelings and concerns. A sample of parents of children with hearing impairment was interviewed to document demographic data related to hearing loss in Maltese children. The present study also attempted to analyse the effect of hearing loss on the parents’ wellbeing. Parents of 23 children with a hearing loss and parents of eight children without a hearing loss participated in the study. Structured face-to-face interviews were carried out with both groups of parents. A self-devised questionnaire was used with parents of children with hearing impairment to collect information about several factors related to the hearing loss. This included documentation of the different types, degrees and causes of hearing loss as well as the ages of suspicion, diagnosis and amplification of children with a hearing loss. The World Health Organisation Quality of Life-BREF (WHOQOL-BREF) questionnaire (World Health Organisation [WHO], 1998) was then used with both groups of parents to obtain a quality of life profile in four domains: physical health, psychological health, social relationships and environment. Slight quality of life differences, which were not statistically significant, were noticed between parents of children with a hearing loss and parents of children without a hearing loss. Quality of life scores were marginally higher for parents whose gap between the day of diagnosis and the interview date was more than 24 months, when compared to parents whose gap was 24 months or less. These findings extend the limited data on the effect of hearing loss on parents’ quality of life in the Maltese context. More intensive support may be indicated for parents of children with hearing impairment, particularly in the initial stages following a diagnosis of a hearing loss. Support would help parents better understand and accept their child’s hearing impairment.