The lived experience of Maltese women diagnosed with PCOS

Abstract

Polycystic Ovary Syndrome (PCOS) is a multifaceted endocrine disorder that affects women worldwide; however, its impact within smaller, culturally distinct settings such as Malta remains underexplored. This study utilised Interpretative Phenomenological Analysis (IPA) to explore the lived experiences of six Maltese women who had received a formal diagnosis of PCOS. Through semi-structured interviews, the research examined participants' emotional, psychological, and social responses to the condition, including their interactions with healthcare services. The findings suggest that while receiving a diagnosis often offered a sense of validation, it also introduced emotional challenges such as fear, uncertainty, and a perceived disruption of identity. Physical manifestations, such as excessive hair growth, acne, and difficulty managing weight, had a detrimental effect on participants’ self-image and sense of femininity. These struggles were further intensified by cultural silences surrounding reproductive and hormonal health in Maltese society. Participants frequently reported dissatisfaction with fragmented care and felt compelled to seek information and support independently, often through online communities. Nonetheless, many women demonstrated resilience by adopting lifestyle changes, developing emotional coping strategies, and fostering self-compassion over time. The findings underscore the urgent need for culturally responsive, interdisciplinary healthcare that incorporates psychological, educational, and relational components. By foregrounding the voices of Maltese women, this research offers important insights into how chronic reproductive health conditions are navigated within conservative cultural environments. It advocates for holistic care models that recognise both the physical and emotional dimensions of PCOS.