The perceived impact of caregiving on the couple relationship, when an adult child has a severe mental illness

Abstract

This study explores the impact on the couple relationship when providing care for adult children with severe mental illness. To explore such a phenomenon, interpretative phenomenological analysis (IPA) was used as a methodology, using a multi-perspective design. In-depth individual and dyadic semi-structured interviews were conducted with three female and three male spouses from three heterosexual couples, whose adult children have a mental illness and reside in the same house as the couple. Participants were recruited through mental health NGOs and the public Mental Health Services. The results captured the individual burden of being a caregiver, and its impact on the other spouse, indicating some gender differences. The participants’ accounts reflected that the role of caregiving emphasised their individual differences, leading to couple discord. Caregiving also limited the couples’ time alone. The impact of caregiving was perceived to influence other family members too. The results indicated that the participants’ similar views, and commitment as a couple, supported by professional and spiritual support, aided their experience as caregivers, and helped in their sons’ wellbeing and future independence. The implications for clinical practice and proposals for policy making drawn from this research suggest that couples and their families require adequate practical, professional, and therapeutic support to aid them process and live through their role as caregivers. Recommendations for future research were also noted.