Advocacy and self‐advocacy in Malta : reflections on the lives of Maltese people with intellectual disability from the 1950s to the present day

Abstract

Background: This article presents an overview and discussion of the main devel- opments in the lives of persons with intellectual disability in Malta over the last

70 years in residential services, education, employment, friendships and relation- ships, culture, sport and leisure activities, having a say in one's own life and how

people look at persons with intellectual disability. It also discusses who were the people who played important parts in these developments.

Materials and Methods: The article is written by an academic and two self‐ advocates with lived experience of intellectual disability. The first author wrote the literature review tracing developments in the disability sector in Malta. These topics were then discussed by the three authors.

Results: Thanks to these developments, persons with intellectual disability can live more independently in their community and develop their potential, including the ability to speak for themselves. However, many persons with intellectual disability do not have a say over how they live their lives and experience a lot of control.

Very often, it is other people who decide for them. Persons with intellectual dis- ability should enjoy relationships in which they are cared for and they care for

others. They should also play an important part in the development of services that are aimed at them.

Conclusions: The authors composed a poem which reflects the main issues that the two self‐advocates consider to be the most important: support, other people's attitudes and knowing what persons with intellectual disability want.