Navigating Data Protection in Scientific Research

At PaDME, we confront the complex interplay between data protection (DP) laws and the burgeoning field of scientific research utilizing health and biometric data with a specific focus on Magnetic Resonance Imaging (MRI). Our origins are rooted in addressing the uncertainty surrounding the application of DP principles at the national and European levels, particularly within databanks which encompass biobanks and repositories of sensitive data like MRI scans.

Our Foundation

There is a need for robust legal frameworks and compliance with prevailing legislation. We stand at the forefront of this initiative, reinforced by UM's strategic investment in an MRI scanner, earmarked for propelling scientific discovery while navigating the intricacies of DP laws.

Our Mission

To dissolve the ambiguity in the sharing, storage, and use of health/biometric data, our mission is two-fold: to develop best practices that are legally sound and to foster a culture of stringent compliance with DP legislation.

Our Approach

We embrace an interdisciplinary strategy, enriched by insights from technology, science, and societal studies, ensuring that the role of law harmonizes with the pulse of society.

Our Impact

The PaDME pilot project is pioneering an innovative toolkit aimed at establishing legal certainty within the realm of scientific data processing. By scrutinizing international experiences and best practices, we aspire to illuminate the path through the GDPR's complexities, ultimately facilitating compliant scientific research across Europe.